Explore Open Heart Surgery and more!

Carley was born a healthy 8lbs 7.5 oz in Dcember 2001.  When she was 2 days old, she started turning dusky (blue) whenever she cried.  Thanks to an observant nursery nurse (Laura) who recognized she was in distress and her Aunt Erica (an OB nurse) who recognized her symptoms as those of a heart defect, Carley immediately received life saving medical care.     She was later diagnosed with a severe heart defect, Hypoplastic Left Heart Syndrome (HLHS), and was life flighted from Virginia to…

My Carmela was born with a heart defect.this was before her heart operation. She was in a drug induced coma here.

It is Congenital Heart Disease Awareness Week this week which coincidentally falls in the middle of HEART Month!  I wanted to give a brief glimpse of my heart story to help put a face to CHD.  I was born A LONG time ago ~ like 1971 with a hole in my heart Ventricular Septal Defect (VSD).  At age 23 just a few days after my birthday I underwent emergency open heart surgery to repair the original hole that was in there between the bottom chambers of my heart (VSD) and to rebuild a leaflet of…

It is Congenital Heart Disease Awareness Week this week which .

Shaun White, the snowboarder, was born with tetralogy of Fallot, a congenital heart defect that affects the way blood flows through the heart. White had two open-heart surgeries before he was a year old, according to Sports Illustrated, and regularly checks in with a heart doc. Flickr photo by Charles McCain

American Heart Month: 17 Celebrities Who Faced Heart Problems

my favorite snowboarder.

Avery after her open heart surgery to repair her TOF. She is a happy, healthy 5 year old today.

CHD Awareness - Avery after her open heart surgery to repair her TOF. She is a happy, healthy 5 year old today.

My son's name is Caleb and he's now 2 yrs. old with Pulmonary Atresia with Intact Ventricular Septum, Tricuspid Stenosis.   He spent the first 4 months in the hospital, awaiting a heart transplant, then ended up getting another open heart surgery instead, Bidirectional Glenn.   He's a happy 2 year old, although he will definitely need more open heart surgery, we take it one day at a time and you can't tell a thing is wrong with him by looking at him.

My son's name is Caleb and he's now 2 yrs. old with Pulmonary Atresia with Intact Ventricular Septum, Tricuspid Stenosis. He spent the first 4 months in the hospital, awaiting a heart transplant, then ended up getting another open heart surgery instead, Bidirectional Glenn. He's a happy 2 year old, although he will definitely need more open heart surgery, we take it one day at a time and you can't tell a thing is wrong with him by looking at him.

William was born in October 2010 and appeared to be completely  healthy. Two days later, as we were being discharged to go home from  the hospital, an observant nurse escorting us to our car noticed  Will's breathing was rapid and shallow and his color didn't look  right.  We returned with her to the nursery and as we watched through  the window, a sinking feeling began to set in that something was  seriously wrong.  A couple of hours later, we were following our 2 day  old baby in an…

William was born in October 2010 and appeared to be completely healthy. Two days later, as we were being discharged to go home from the hospital, an observant nurse escorting us to our car noticed Will's breathing was rapid and shallow and his color didn't look right. We returned with her to the nursery and as we watched through the window, a sinking feeling began to set in that something was seriously wrong. A couple of hours later, we were following our 2 day old baby in an…

Lee "Heart of a Lion" Ciciarelli is what my brother-in-law calls my 22 month old son.  On Easter Monday 2010 (April 5) our son, Lee was born 7 weeks early due to my pre-eclampsia, he was only 3 lbs 2 oz.  Fast forward to Easter Monday 2011 (April 25), our son was diagnosed with a very rare and serious heart condition called LongQT 8 aka Timothy Syndrome.  Unfortunately, if you google this condition, you won't find anything positive about this condition.  The average life expectancy is 3…

Lee "Heart of a Lion" Ciciarelli

This is Madelyn born Aug 6 2009 with HLHS (hypoplastic left heart syndrome) and TAPVR (total anomalous pulmonary venous return). We were told she would need a 3 stage operation to help her half a heart she was born with to function. She had her first open heart surgery at 7 days old where a Norwood-Sano shunt was put in to help the blood flow through her body and back to her heart.  She had several complications from this surgery including kidney failure and her blood pressure dropped so low…

This is Madelyn born Aug 6 2009 with HLHS (hypoplastic left heart syndrome) and TAPVR (total anomalous pulmonary venous return). We were told she would need a 3 stage operation to help her half a heart she was born with to function. She had her first open heart surgery at 7 days old where a Norwood-Sano shunt was put in to help the blood flow through her body and back to her heart. She had several complications from this surgery including kidney failure and her blood pressure dropped so low…

Field was born with Double Inlet Left Ventricle, a serious and complex congenital heart defect.  We did not know about the defect before his birth, but by the grace of God, a nurse "happened" to check his oxygen sats before discharge and found that they were very low.  After 2 heart surgeries (Pulmonary Artery Banding and DKS/Bidirectional Glenn Shunt), one heart cath, and more medical check-ups than I can count, we have a healthy, thriving, and very smart toddler.  Field has surpassed all…

The Balcueva Family Memorial Scholarship was established in 1998 in memory of the four young sons Edgar and Mary Jane Balcueva have lost due to a rare congenital heart defect- Eddie, Randy, Brad and Rick.

Silly. Princess. Loving. Knows too much about Doctors and Hospitals at the young age of 3. This is the face of a CHD Warrior Princess! She has had 2 open heart surgeries due to an Interrupted Aortic Arch, VSD and Sub-Aortic Stenosis and is facing a third surgery in the next year. Undiagnosed until after she was born but this is has brought some GREAT families into our lives!

Silly. Princess. Loving. Knows too much about Doctors and Hospitals at the young age of 3. This is the face of a CHD Warrior Princess! She has had 2 open heart surgeries due to an Interrupted Aortic Arch, VSD and Sub-Aortic Stenosis and is facing a third surgery in the next year. Undiagnosed until after she was born but this is has brought some GREAT families into our lives!

My sweet Colin was born at 30 weeks gestation along with his 2 triplet brothers via Cesarean section on December 27, 2008.  At 3 pounds and 4 ounces the doctors quickly realized that Colin was working too hard to breathe despite interventions.  An echocardiogram diagnosed his heart defect which is Transposition of the Great Vessels.  To make matters even more difficult, Colin was born with only one coronary artery.  His subclavian artery was grafted to create a new coronary artery on his…

My sweet Colin was born at 30 weeks gestation along with his 2 triplet brothers via Cesarean section on December 27, 2008. At 3 pounds and 4 ounces the doctors quickly realized that Colin was working too hard to breathe despite interventions. An echocardiogram diagnosed his heart defect which is Transposition of the Great Vessels. To make matters even more difficult, Colin was born with only one coronary artery. His subclavian artery was grafted to create a new coronary artery on his…

This is Severin he has CHDs but CHDs do not have him
"Their stats" vs His stats  "CHD" Isn't that what old people have? "Less then .03% chance of these heart defects happening." Who cares it happened to my baby - so that makes it 100% for him! "Only 60% chance of survival." Not today.  PreDiagnosis: Tricuspid Artresia, Hypoplastic Right Heart Syndrome, Transposition of Great Arteries, Coarctation of the Aorta, Ventrical Septal Defect, Double Inlet Left Ventrical, his Pulmonary Artery is too…

This is Severin he has CHDs but CHDs do not have him "Their stats" vs His stats "CHD" Isn't that what old people have? "Less then .03% chance of these heart defects happening." Who cares it happened to my baby - so that makes it 100% for him! "Only 60% chance of survival." Not today. PreDiagnosis: Tricuspid Artresia, Hypoplastic Right Heart Syndrome, Transposition of Great Arteries, Coarctation of the Aorta, Ventrical Septal Defect, Double Inlet Left Ventrical, his Pulmonary Artery is too…

My precious angel Kayla was born December 16, 2006. Two days after her birth we learned she had Tetrology of Fallot, a complex heart defect. The next 3 1/2 months were filled with weekly doctor visits, many tears, unimaginable fear, combatted with lots of prayers. On March 22, 2007, at 3 1/2 months, Kayla underwent open heart surgery to repair the large hole in her heart and patch her pulmonary valve. In this picture she is looking at me for the FIRST time after having her sugary. I'm happy…

My precious angel Kayla was born December Two days after her birth we…

Our little Zeke was born with multiple heart defects which went undiagnosed for the first SEVEN weeks of his life. I had no idea what signs to look for and the day his little body quit working was a scary one. The ductus arteriosis is part of the heart that bypasses the lungs and takes blood straight to the body while in utero. It normally closes within the first 24 hours of life allowing the lungs to function at full capacity. Zeke's stayed open bypassing the coarctation in his aorta. His…

example of clubbing secondary to pulmonary hypertension in a patient with Eisenmengers syndrome

Anniston is a beautiful 2 1/2 year old girl who was born with the CHDs Interrupted Aortic Arch and VSD.  When she was three days old, she had surgery to connect her aorta and to repair her VSD at the Children's Hospital of Philadelphia...a wonderful place!  Anniston acquired an infection in her incision after surgery, so we were in the hospital for one month.  She had a heart cath at 4 months to open her aorta which had narrowed significantly after her open heart surgery.  She had a major…

Anniston is a beautiful 2 1/2 year old girl who was born with the CHDs Interrupted Aortic Arch and VSD. When she was three days old, she had surgery to connect her aorta and to repair her VSD at the Children's Hospital of Philadelphia...a wonderful place! Anniston acquired an infection in her incision after surgery, so we were in the hospital for one month. She had a heart cath at 4 months to open her aorta which had narrowed significantly after her open heart surgery. She had a major…

Rubi was born May 2011 at 38 weeks, weighed 4lbs 13oz, and was diagnosed as having a VSD in a postnatal echo within minutes of birth. For 3 months we watched for breathing and eating issues and we gave her her daily dose of Lasix. We saw her cardiologist bimonthly and prayed that the hole would close itself. At 3 months, the cardiologist said she would need surgery so on September 9th we did the scariest thing of our lives: put our little girl in the hands of a heart surgeon at Denver…

Rubi was born May 2011 at 38 weeks, weighed 4lbs 13oz, and was diagnosed as having a VSD in a postnatal echo within minutes of birth. For 3 months we watched for breathing and eating issues and we gave her her daily dose of Lasix. We saw her cardiologist bimonthly and prayed that the hole would close itself. At 3 months, the cardiologist said she would need surgery so on September 9th we did the scariest thing of our lives: put our little girl in the hands of a heart surgeon at Denver…

Pinterest
Search