Carley was born a healthy 8lbs 7.5 oz in Dcember 2001.  When she was 2 days old, she started turning dusky (blue) whenever she cried.  Thanks to an observant nursery nurse (Laura) who recognized she was in distress and her Aunt Erica (an OB nurse) who recognized her symptoms as those of a heart defect, Carley immediately received life saving medical care.     She was later diagnosed with a severe heart defect, Hypoplastic Left Heart Syndrome (HLHS), and was life flighted from Virginia to…

Carley was born a healthy 8lbs 7.5 oz in Dcember 2001. When she was 2 days old, she started turning dusky (blue) whenever she cried. Thanks to an observant nursery nurse (Laura) who recognized she was in distress and her Aunt Erica (an OB nurse) who recognized her symptoms as those of a heart defect, Carley immediately received life saving medical care. She was later diagnosed with a severe heart defect, Hypoplastic Left Heart Syndrome (HLHS), and was life flighted from Virginia to…

It is Congenital Heart Disease Awareness Week this week which coincidentally falls in the middle of HEART Month!  I wanted to give a brief glimpse of my heart story to help put a face to CHD.  I was born A LONG time ago ~ like 1971 with a hole in my heart Ventricular Septal Defect (VSD).  At age 23 just a few days after my birthday I underwent emergency open heart surgery to repair the original hole that was in there between the bottom chambers of my heart (VSD) and to rebuild a leaflet of…

It is Congenital Heart Disease Awareness Week this week which coincidentally falls in the middle of HEART Month! I wanted to give a brief glimpse of my heart story to help put a face to CHD. I was born A LONG time ago ~ like 1971 with a hole in my heart Ventricular Septal Defect (VSD). At age 23 just a few days after my birthday I underwent emergency open heart surgery to repair the original hole that was in there between the bottom chambers of my heart (VSD) and to rebuild a leaflet of…

Cardiothoracic Surgery | The Heart Institute | Heart Transplant - Childrens Hospital Los Angeles

Cardiothoracic Surgery | The Heart Institute | Heart Transplant - Childrens Hospital Los Angeles

MLH - doing great things for children and families with Congenital Heart Disease

MLH - doing great things for children and families with Congenital Heart Disease

Silly. Princess. Loving. Knows too much about Doctors and Hospitals at the young age of 3. This is the face of a CHD Warrior Princess! She has had 2 open heart surgeries due to an Interrupted Aortic Arch, VSD and Sub-Aortic Stenosis and is facing a third surgery in the next year. Undiagnosed until after she was born but this is has brought some GREAT families into our lives!

Silly. Princess. Loving. Knows too much about Doctors and Hospitals at the young age of 3. This is the face of a CHD Warrior Princess! She has had 2 open heart surgeries due to an Interrupted Aortic Arch, VSD and Sub-Aortic Stenosis and is facing a third surgery in the next year. Undiagnosed until after she was born but this is has brought some GREAT families into our lives!

Trey Broox Hardy  Born June 2nd 2011  Born with Hypoplastic Left Heart Syndrome with very leaky mitro valve  We were told that his heart wasnt fixable because it was so bad, we were put on the transplant list the day after Trey was born. A month and half later one of the echo's showed the mitro valve not leaking as much, they took our case to the bored and decided to try the surgeries.  Trey was in the CICU for 3 months.He is 7 months old now. He amazes me to watch everyday he is so strong…

Trey Broox Hardy Born June 2nd 2011 Born with Hypoplastic Left Heart Syndrome with very leaky mitro valve We were told that his heart wasnt fixable because it was so bad, we were put on the transplant list the day after Trey was born. A month and half later one of the echo's showed the mitro valve not leaking as much, they took our case to the bored and decided to try the surgeries. Trey was in the CICU for 3 months.He is 7 months old now. He amazes me to watch everyday he is so strong…

Our baby has PJRT, a persistent or permanent form of Supraventricular Tachycardia (SVT).  Her heart thinks it's OK to beat twice as fast (sometimes faster) than normal.  This can wear the heart muscle out and cause cardiac arrest.  She was diagnosed at 1 week old when we knew something wasn't right because she all she wanted to do was sleep, no amount of coaxing could wake her even long enough to eat.  She was rushed to the local children's hospital where we spent 3 weeks getting an official…

Our baby has PJRT, a persistent or permanent form of Supraventricular Tachycardia (SVT). Her heart thinks it's OK to beat twice as fast (sometimes faster) than normal. This can wear the heart muscle out and cause cardiac arrest. She was diagnosed at 1 week old when we knew something wasn't right because she all she wanted to do was sleep, no amount of coaxing could wake her even long enough to eat. She was rushed to the local children's hospital where we spent 3 weeks getting an official…

CHD?  Congenital Heart Defects?  Up until 4 years ago, I had never really heard those words before, let alone think my son would be born with one of the most serious/complex heart defects.   Anyone can have a child born with a Congenital Heart Defect.  Anyone can be that 1 in 100. That is why it is so important to continue to spread awareness and that all babies are closely checked through a routine ultrasound prenatally and through a pulse oximetry newborn screening.

CHD? Congenital Heart Defects? Up until 4 years ago, I had never really heard those words before, let alone think my son would be born with one of the most serious/complex heart defects. Anyone can have a child born with a Congenital Heart Defect. Anyone can be that 1 in 100. That is why it is so important to continue to spread awareness and that all babies are closely checked through a routine ultrasound prenatally and through a pulse oximetry newborn screening.

Darla Jane was not pre-diagnosed, we found out the day after she was born that she had Hypoplastic Left Heart Syndrome.  The left side of her heart had not developed at all.  We were swept away to the local children's hospital as we were also swept into the world  of congenital heart defects.  There was so much to learn, so much to know, so much that we couldn't understand.  But over these last 10 months we have learned so much and met so many people that will forever shape the rest of our…

Darla Jane was not pre-diagnosed, we found out the day after she was born that she had Hypoplastic Left Heart Syndrome. The left side of her heart had not developed at all. We were swept away to the local children's hospital as we were also swept into the world of congenital heart defects. There was so much to learn, so much to know, so much that we couldn't understand. But over these last 10 months we have learned so much and met so many people that will forever shape the rest of our…

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