Explore Nursing Notes, Chd Awareness and more!

Carley was born a healthy 8lbs 7.5 oz in Dcember 2001.  When she was 2 days old, she started turning dusky (blue) whenever she cried.  Thanks to an observant nursery nurse (Laura) who recognized she was in distress and her Aunt Erica (an OB nurse) who recognized her symptoms as those of a heart defect, Carley immediately received life saving medical care.     She was later diagnosed with a severe heart defect, Hypoplastic Left Heart Syndrome (HLHS), and was life flighted from Virginia to…

My Carmela was born with a heart defect.this was before her heart operation. She was in a drug induced coma here. Products used by Jody Lee

Our dishwasher and microwave safe ceramic mugs, are created using our own professional equipment. We use a special ink that is fused into the glaze of the mug with our industrial high heat hand press,

Buy Less Britney 2007 Mug at Frankly Noted for only $ 13.00

Our dishwasher and microwave safe ceramic mugs, are created using our own professional equipment. We use a special ink that is fused into the glaze of the mug with our industrial high heat hand press,

Amazing smile from a 10 week old baby after open heart surgery…

Amazing smile from a 10 week old baby after open heart surgery…

CHD?  Congenital Heart Defects?  Up until 4 years ago, I had never really heard those words before, let alone think my son would be born with one of the most serious/complex heart defects.   Anyone can have a child born with a Congenital Heart Defect.  Anyone can be that 1 in 100. That is why it is so important to continue to spread awareness and that all babies are closely checked through a routine ultrasound prenatally and through a pulse oximetry newborn screening.

CHD? Congenital Heart Defects? Up until 4 years ago, I had never really heard those words before, let alone think my son would be born with one of the most serious/complex heart defects. Anyone can have a child born with a Congenital Heart Defect. Anyone can be that 1 in 100. That is why it is so important to continue to spread awareness and that all babies are closely checked through a routine ultrasound prenatally and through a pulse oximetry newborn screening.

"This is Albie and he was born 23 February 2011 with a CHD (Transposition of the Great Arteries, Pulmonary Stenosis, Sub-Pulmonary Stenosis and a VSD). He has had three procedures and a shunt operation so far and we await open-heart surgery in the next few months. Its been a big year to say the least. But do you know what? Albie was born, like all of these fighters, not 'just' with a heart condition. He was born laden with many, many more gifts and he has taught me so much already. I know…

Every heart has a story – and this is his.

Our little lad needs more open heart surgery next year.  We have always known this to be the case.  He has Hypoplastic Left Heart Syndrome, the left side of his heart doesn’t work.  The surgi…

Waiting for the Fontan

Our little lad needs more open heart surgery next year. We have always known this to be the case. He has Hypoplastic Left Heart Syndrome, the left side of his heart doesn’t work. The surgi…

Meet my amazing son Oakes: Today he is doing just fine! Oakes was diagnosed in utero with Truncus Arteriosis. Oakes has had open heart surgeries, dozens of procedures, cath lab trips, unbelievable amounts of medications, support and interventions. He has had complications and surprise diagnosis. Oakes is 11 months old, yet his story is big, and it is complex. Without a doubt part of his story is about donation. He has received donated blood, donated tissue, valves for his heart and most…

Meet my amazing son Oakes: Today he is doing just fine! Oakes was diagnosed in utero with Truncus Arteriosis. Oakes has had open heart surgeries, dozens of procedures, cath lab trips, unbelievable amounts of medications, support and interventions. He has had complications and surprise diagnosis. Oakes is 11 months old, yet his story is big, and it is complex. Without a doubt part of his story is about donation. He has received donated blood, donated tissue, valves for his heart and most…

Educating parents about congenital heart defects (Infographic)

The Surprisingly Common World of Congenital Heart Defect [INFOGRAPHIC] . somewhat good but also saw that it had some mistakes (like not suggested atrial septal defects can require open surgery based on size)

A blog on recovering from Open Heart Surgery and living with Congenital Heart Disease as a young woman. Heart of a Zipper Sister shows what the surgery and recovery process is all about from the view of an otherwise healthy young adult

A blog on recovering from Open Heart Surgery and living with Congenital Heart Disease as a young woman. Heart of a Zipper Sister shows what the surgery and recovery process is all about from the view of an otherwise healthy young adult

This means a lot to me too, my Mom was born with a CHD.    CHD Awareness Week 2012 - February 7th-14th. 1 in 100 children are born with a congenital heart defect. Ethan was the 1. He was born on November 14th,2010 but was diagnosed with an intracardiac mass on his septum in utero at 37 weeks. Thankfully we were aware of his condition before he was born, but many chd's go undetected. CHD'S are the number one killer of children.

This means a lot to me too, my Mom was born with a CHD. CHD Awareness Week 2012 - February 7th-14th. 1 in 100 children are born with a congenital heart defect. Ethan was the 1. He was born on November 14th,2010 but was diagnosed with an intracardiac mass on his septum in utero at 37 weeks. Thankfully we were aware of his condition before he was born, but many chd's go undetected. CHD'S are the number one killer of children.

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