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Patrick O’Keefe: The stigma surrounding schizophrenia is self-perpetuating, making those diagnosed afraid of “coming out” for fear of repercussions and discriminations. In “The S Word: The Stigma of Schizophrenia,” we look at this disease in a way the media rarely does — from the inside out.

Patrick O’Keefe: The stigma surrounding schizophrenia is self-perpetuating, making those diagnosed afraid of “coming out” for fear of repercussions and discriminations. In “The S Word: The Stigma of Schizophrenia,” we look at this disease in a way the media rarely does — from the inside out.

A journey through schizophrenia, from researcher to patient and back. https://www.statnews.com/2016/06/14/schizophrenia-journey/

A journey through schizophrenia, from researcher to patient and back

While working in a schizophrenia research lab, Brandon Chuang was diagnosed with the disease. Now he gives other patients hope.

Pharma articles Patient perspectives: Alan Thomas: In our rare disease themed month, we interview Alan Thomas, ataxia patient and chairman of Ataxia South Wales, on unmet needs in this space.

Pharma articles Patient perspectives: Alan Thomas: In our rare disease themed month, we interview Alan Thomas, ataxia patient and chairman of Ataxia South Wales, on unmet needs in this space.

Lisa Bonchek Adams shared her breast cancer battle with strangers through tweets and blogs online. On Friday, the mother of three passed away at 9:45 pm. "The thousands upon thousands who knew and loved Lisa Bonchek Adams; whether in person or via Facebook, Twitter, or her website and blog read around the world; whether up close or from afar; will find it hard to believe that her steely will and indomitable spirit were finally overcome by the disease she had lived with for so many years,"…

Lisa Bonchek Adams, Woman Who Chronicled Cancer, Passes Away

Lisa Bonchek Adams Writings on metastatic breast cancer, grief & loss, life, and family. IN MEMORIUM – 6 MARCH 2015 When Lisa wrote the words below about this site coming “full circle” she meant no irony, but as noted in the … Continue reading →

Joyce Graff—a pioneer for rare disease patients http://www.powerfulpatient.org/transition/ #RareDisease

Joyce Graff retires from the VHL Alliance and formally launches the next phase of the Powerful Patient.

3 Reasons Why I Advocate for Klippel-Feil Syndrome

3 Reasons Why I Advocate for Klippel-Feil Syndrome

Heart Disease, Inspiring People, Healthy Food, Healthy Foods, Eating Healthy, Health Foods, Eat Healthy

Kouri Wright gives us an inside look at her 8 year old son's battle with Crohn's disease and what it means to be a parent to a chronically ill child.

'Trauma in the Midst of Miracles': Timmy’s Story

Kouri Wright gives us an inside look at her 8 year old son's battle with Crohn's disease and what it means to be a parent to a chronically ill child.

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