Rett Syndrome is a debilitating neurological disorder diagnosed almost exclusively in females. Children with Rett Syndrome appear to develop normally until 6 to 18 months of age when they enter a period of regression, losing speech and motor skills. Most develop repetitive hand movements, irregular breathing patterns, seizures and extreme motor control problems. Rett leaves its victims profoundly disabled, requiring maximum assistance with every aspect of daily living. There is no cure!!!
Love my Angel!! My daughter MaKenzie has Angelman Syndrome. She is the happiest sweetest lil girl you could ever meet! As she can not talk she communicates in her own way, she can not walk but is fast getting around her own way and is sneaky about it too. We deal with Epilepsy daily, lists of meds and hardships are a daily occurrence. I would not trade her for the world! I love her with everything I am!
Erica's Page | Links Imagine the symptoms of autism, cerebral palsy, Parkinson's, epilepsy, and anxiety disorders…all in one little girl. Now imagine these symptoms vanishing ... one by one.This is the work of the Rett Syndrome Research Trust.
Support BROOKLYNN'S BATTLE with Rett Syndrome - This is Brooklynn. She has Rett Syndrome with Epilepsy. Brooky cannot speak, sign or move like her peers. She has difficulty walking as her muscles don't work like they're supposed to. She understands everything, she just can't express like us.
Fun Fundraiser! Team Rett Boston Marathon 2012! Team Rett FundRacers will be raising money for the very first clinical trial of the IGF1 growth hormone currently underway at Children's Hospital Boston in hopes that Rett Syndrome can be reversed! Please support Team Rett in its efforts to fund research that ma lead to a cure for Rett Syndrome! GO!!
"My daughter has Rett Syndrome - a devastating childhood neurological disorder that has robbed her of the ability to speak, walk, use her hands. She suffers from seizures, anxiety, breathing disorder, GI issues."