My Daughter's Disease is Not Useless Information. The Indispensible Book of Useless Facts has cystinosis under it's "Mystery Diagnosis" section. I explain why cystinosis is not, in fact, usless information
My child is NOT a statistic, NOT a number, NOT a diagnosis, but a person with different abilities taking on a difficult world. She proves everyday that she's a miracle & that she will never ever give up. I am her voice & she is my heart.