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Toss out the guilt. You have done nothing to feel guilty about. You are ill. Governments, the medical profession - that's a different matter. They ought to be swimming in guilt for ignoring this disease for so long and for denigrating patients!

I called my pain meds to say that they were supposed to be stopping my pain. They said they liked that joke too. | Encouragement Ecard |

Lupus, Rheumatoid Arthritis-Sjogren's-autoimmune illness-chronic pain-chronic kidney disease-Meniere's Disease-Autoimmune Ear Disease

from Elle and the Auto Gnome

Ankylosing Spondylitis on the McGill Pain Scale

Recently Ankylosing Spondylitis (AS) has been found to involve neuropathic pain. A question from a fellow patient about the McGill Pain Scale score for the condition resulted in me pottering off to...

from Rosalein's notitieboek online

We try to seem as “normal” as possible

Lupie/fibro patients tend to minimize their pain to try to seem as "normal" as possible...Guilty as charged!

We need to treat the cause! This has put life on hold for myself, my sons and my granddaughter! So few doctors detect without the patient telling seems like its up to us to research and ' teach our primary physicians' to refer us to Geneticist!