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Noah Coughlan - Running across America to Raise Awareness about Battens Disease!  What an amazing guy!  Don't let him run for nothing - repin, like his FB page.  Support him and the families that need you!

Noah Coughlan - Running across America to Raise Awareness about Battens Disease! What an amazing guy! Don't let him run for nothing - repin, like his FB page. Support him and the families that need you!

Recent Radio Interview on Batten disease by Heather Dainiak. Radio interview on WGIR which aired 6/1/2012, discussed Batten disease and the FORE! Nicholas Golf tournament and dinner.

Recent Radio Interview on Batten disease by Heather Dainiak. Radio interview on WGIR which aired 6/1/2012, discussed Batten disease and the FORE! Nicholas Golf tournament and dinner.

Sponsoring rare disease and the charity Bee for Battens

Sponsoring rare disease and the charity Bee for Battens

Batten

Kristen Gray, parent advocate and co-founder of the organization Cure Batten, with her family

Hollywood producer's campaign to find cure for daughters' rare disease

Kristen Gray, parent advocate and co-founder of the organization Cure Batten, with her family

This is the clip of the poem I read and dedicated to my daughter at her memorial service.  She suffered for years with a terminal illness called Batten disease. I'm sad but glad she's "in God's hands"    HERE IS A BRIEF DESCRIPTION OF BATTEN DISEASE:   Batten disease is a fatal, inherited disorder of the nervous system that begins at childhood. ...

This is the clip of the poem I read and dedicated to my daughter at her memorial service. She suffered for years with a terminal illness called Batten disease. I'm sad but glad she's "in God's hands" HERE IS A BRIEF DESCRIPTION OF BATTEN DISEASE: Batten disease is a fatal, inherited disorder of the nervous system that begins at childhood. ...

https://www.facebook.com/raisinkaneforbattendisease

https://www.facebook.com/raisinkaneforbattendisease

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