With EDS – “The Glue in Your Body Doesn’t Work Properly Any More.” Ehlers-Danlos Syndrome Canada is a very active organization helping those in their area with EDS. By Alison Langley, Niagara Falls Review Picture: Tiffany Skladan, founder and president of the Ehlers-Danlos Syndrome Canada, and Kathleen Eubanks,
In this VIDEO, Dr. Jeff Milunsky describes how a new DNA chip test, CONNECT1, detects multiple mutations that are diagnostic for connective tissue disorders such as Marfan, Ehlers-Danlos, and Loeys-Dietz syndromes. Dr. Jeff Milunsky is the Co-director of the Center for Human Genetics, Inc
Claire Francomano Adult Genetics Her clinical and research interests include the hereditary disorders of connective tissue and skeletal dysplasias. She received EDNF's Shining Star award in 2012 for her dedication to people with EDS.
EDS is not as “rare” as some people think …. but it is “rarely properly diagnosed”! A very rare life-threatening disease that affects about one in every people has struck three members of the same Skegness area.