Explore Ehlers Danlos Syndrome, Young Man, and more!

Fight to be Upright! Charlie’s Campaign for Lifesaving Surgery

Fight to be Upright! Charlie’s Campaign for Lifesaving Surgery

With EDS – “The Glue in Your Body Doesn’t Work Properly Any More.”   Ehlers-Danlos Syndrome Canada is a very active organization helping those in their area with EDS.  By Alison Langley, Niagara Falls Review Picture: Tiffany Skladan, founder and president of the Ehlers-Danlos Syndrome Canada, and Kathleen Eubanks,

With EDS – “The Glue in Your Body Doesn’t Work Properly Any More.” Ehlers-Danlos Syndrome Canada is a very active organization helping those in their area with EDS. By Alison Langley, Niagara Falls Review Picture: Tiffany Skladan, founder and president of the Ehlers-Danlos Syndrome Canada, and Kathleen Eubanks,

In this VIDEO, Dr. Jeff Milunsky describes how a new DNA chip test, CONNECT1, detects multiple mutations that are diagnostic for connective tissue disorders such as Marfan, Ehlers-Danlos, and Loeys-Dietz syndromes. Dr. Jeff Milunsky is the Co-director of the Center for Human Genetics, Inc

In this VIDEO, Dr. Jeff Milunsky describes how a new DNA chip test, CONNECT1, detects multiple mutations that are diagnostic for connective tissue disorders such as Marfan, Ehlers-Danlos, and Loeys-Dietz syndromes. Dr. Jeff Milunsky is the Co-director of the Center for Human Genetics, Inc

http://www.chronicpainpartners.com/eds-doctor-speaker-series-april-16-2014/

Pradeep Chopra presents “EDS Pain Management – Connecting the DOTS Part

Mary Billiter Weekly Newspaper Columnist    Here's link to great piece regarding the connection between romancing your home and romancing your marriage!  #DIY #Furniture #HowTo #RomancingYourHome #Column  Billiter: Romancing the home  http://trib.com/opinion/columns/billiter-romancing-the-home/article_6160e4bd-36d0-569d-a592-3339915e9e4e.html

A Geneticist Diagnosed my Daughter Ciara with Ehlers-Danlos Syndrome

On July 21, 2015, Dr. John Mitakides presents “Musculoskeletal Headaches in EDS”.

Mitakides is a leading expert in the field of treatment of TMJ and craniofacial pain, including TMJ in conjunction with Ehlers-Danlos Syndrome - Learn mo.

Don’t miss this video! Dr. Francomano, EDS expert, talks about Ehlers-Danlos as a multi-dimensional disorder that can profoundly affect quality-of-life. - See more at: http://www.chronicpainpartners.com/dr-francomano-video-ehlers-danlos-affect-on-multiple-body-systems/#sthash.HSuGMwNZ.dpuf

Claire Francomano Adult Genetics Her clinical and research interests include the hereditary disorders of connective tissue and skeletal dysplasias. She received EDNF's Shining Star award in 2012 for her dedication to people with EDS.

10-year-old with Ehlers-Danlos syndrome Joins UWGB’s Softball Team

with Ehlers-Danlos syndrome Joins UWGB’s Softball Team

Articles by and co-authored by AG Pocinki on Google Scholar

Alan Pocinki M. DC Autonomic Doctor, focused on patients with JHS, EDS type disorders

NDRF > Loose Connections e-Magazine. Stay apprised of the latest news on EDS / Ehlers-Danlos Syndrome, published 3 times per year.

NDRF > Loose Connections e-Magazine. Stay apprised of the latest news on EDS / Ehlers-Danlos Syndrome, published 3 times per year.

“Vascular Ehlers-Danlos Syndrome” Webinar by Dr. Peter Byers on December 17, 2014

“Vascular Ehlers-Danlos Syndrome” Webinar by Dr. Peter Byers on December 2014

Amiee Campaigns for EDS Treatment in Ireland

Posts about Diagnosis written by admin

EDS is not as “rare” as some people think ….. but it is “rarely properly diagnosed”! A very rare life-threatening disease that affects about one in every 250,000 people has struck three members of the same Skegness area.

EDS is not as “rare” as some people think …. but it is “rarely properly diagnosed”! A very rare life-threatening disease that affects about one in every people has struck three members of the same Skegness area.

Manu Sood, MD Katja Kovacic, MD “Gastrointestinal Motility Disorders and Cyclic Vomiting”

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