I have Chiari malformation type I. Diagnosed in 1993. In my case, even though I was born with it, it appears to be acquired rather than congenital. There is no cure, there is only the hope that the symptoms can be treated successfully.
After surgery we are called Zipperheads..lol "Zipperhead" comes from the appearance of the long surgical incision that is closed with several staples. It looks like we are zipped up from our neck to the top of our head.