Undiagnosed chronic illness

There are a few ways of dealing with undiagnosed chronic illness—and the subsequent undiagnosed chronic illness emotions that come with it.

#chronicillness

Last month I had an appointment at a rheumatologist to get evaluated for Hypermobile Ehlers-Danlos Syndrome (hEDS) or Hypermobility Spectrum Disorder (HSD). If you follow me on Twitter, you already know this did not go so well. I already knew I didn’t fit the hEDS criteria, as they’ve been made really strict in order to…

The Mighty community shares things they experienced because they had an undiagnosed illness.

"Life undiagnosed is not fun."

Undiagnosed But Something Is Definitely Wrong Relatable and empowering tee for those navigating the challenges of undiagnosed illnesses. Perfect for raising awareness and finding community. #undiagnosed #invisibleillness #chronicillness #healthadvocate #mentalhealth #spoonie #chronicpain #medicalmystery #zebrastrong #raredisease

The loss of identity is an inevitable trauma experienced by those who become chronically ill or disabled. Here's how to regain your self-worth.

"It feels like you live in limbo."

So far, I’ve heard well-meaning but uninformed people say just about every one of these “helpful” things – so I could fill out my Chronic Illness Bingo card pretty darned qu…

Do you struggle with a chronic illness? Do you wish you could go back in time and tell yourself something before your diagnosis? Click the link to read the things that I wish I could tell my undiagnosed self!