Support RareDiseaseDay February28 and Wear Jeans! The last day of February is Rare Disease Day.

Global Genes - Building awareness and communities to support and find treatments for Rare Diseases

Statistics and Figures on Prevalence of Genetic and Rare Diseases Although rare and genetic diseases, and many times the symptoms, are uncommon to most doctors, rare diseases as a whole represent a…

Statistics and Figures on Prevalence of Genetic and Rare Diseases Although rare and genetic diseases, and many times the symptoms, are uncommon to most doctors, rare diseases as a whole represent a…

Shoutout for all those fighting invisible illnesses such as CRPS / RSD / EDS / Lyme / Lupus / CFS / Fibromyalgia

Shoutout for all those fighting invisible illnesses such as CRPS / RSD / EDS / Lyme / Lupus / CFS / Fibromyalgia / MS

This is a story of the power of perseverance and love. A man named Kevin Lue was triathlete who developed a rare disease that caused his heart to fail. In a matter of months he went from intense competition to barely being able to walk. He needed a heart transplant. In addition to his new heart, he got a whole lot more.

This is a story of the power of perseverance and love. A man named Kevin Lue was triathlete who developed a rare disease that caused his heart to fail.

Rare Disease Day is an annual observance held on the last day of February to raise awareness for rare diseases and improve access to treatments and medical representation for individuals with rare diseases and their families.

Rare Disease Day is an annual observance held on the last day of February to raise awareness for rare diseases and improve access to treatments and medical representation for individuals with rare diseases and their families.

Rare Disease Day is February 29th. Check out NORD, National Organization for Rare Diseases on Facebook or NORD.org to see how you can raise awareness in your state. I am sharing my story on Feb 29th for RSD/CRPS!  Raising awareness for chronic illness is how I win! Awareness posters. Chronic pain and chronic illness. Spoonie

Rare Disease Day is February 29th. Check out NORD, National Organization for Rare Diseases on Facebook or NORD.org to see how you can raise awareness in your state. I am sharing my story on Feb 29th for RSD/CRPS! Raising awareness for chronic illness is how I win! Awareness posters. Chronic pain and chronic illness. Spoonie

Rare Disease Day | Ehlers-Danlos Syndrome ~ Chiari Malformation ~ Postural Orthostatic Tachycardia Syndrome

Rare Disease Day | Ehlers-Danlos Syndrome ~ Chiari Malformation ~ Postural Orthostatic Tachycardia Syndrome

Share now to advocate for rare disease!

Building awareness and communities to support and find treatments for Rare Diseases

*Ehlers-Danlos Syndrome*  *Mast Cell Activation*  -- Rare Disease Patients

24 Things People With Rare Diseases Wish Others Understood

Real people living with rare diseases share their experiences and what they wish others knew.

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