In honour of Rare Disease Day 2015, Siren Interactive has released an infographic that explains how rare disease communities are playing a leadership role in the development of precision medicine, a trend which will have a profound impact on the future of healthcare.
We have to find a way to live along side our diseases. We can either live as happy lives as possible or as miserably as we can. It's our choice. Our choice is what others see. The times when it's all to much - just be honest. It'll pass.
Rare Disease. Some Doctors see me walk in the door & get excited by the fact that I'm a "rare" case while others run like hell the other way. It's interesting, I prefer the ones who are excited as long as they aren't too excited, I'm still a human experiencing this illness after all.