Rare Disease Day

Rare Disease Day 2016: a Highlight on Scleroderma

Rare Disease Day

I am very excited to make Rare Disease Day 2016 the focus of my first post for Scleroderma News. What is Rare Disease Day? From Eurordis.org: “Held each year on the last day of February, Rare Disease Day is an annual awareness-raising event coordinated by EURORDIS. The main objective of Rare Disease Day is to raise …

Rare Disease Day 2016: a Highlight on Scleroderma

Read about a study finding defensins and IL-8 to be higher in the lungs of patients with systemic sclerosis interstitial lung disease.

Systemic Sclerosis Patients with ILD Seen to Have High Levels of Defensins in Lungs

Read about a study suggesting that atezolizumab is a better treatment option for patients with previously treated NSCLC, than docetaxel.

Rare Disease Day is being observed at the NIH on Feb 29, 2016. You can either attend in person or listen to the lectures via webinar. #RareDiseaseDay #NIH

Rare Disease Day at NIH logo, February National Institutes of Health, Bethesda, Maryland

Rare disease day 2016

Rare disease day 2016

Rare Disease Day ® 2016. Join us in making the voice of Rare diseases heard  29 february

Become more aware of The National Rare Disease Day! February Support those who live with these rare diseases every day!

Rare Disease Day 2016: Patient Voice

Rare Disease Day 2016 recognizes the crucial role that rare disease patients play in voicing their needs and instigating change.

Donated piece of the Martian Manhunter for Mason's Superhero Day  Unfortunately Mason's world has turned around very quickly! - July 2016 he got viral pneumonia and was stuck in hospital - By October 2016 he was diagnosed with a very rare incurable Lung Disease! - June 2017 he became one of currently only two children on the AUS/NZ paediatric Lung Transplant Wait List! Event details: http://ift.tt/2j6w9sJ

Donated piece of the Martian Manhunter for Mason's Superhero Day Unfortunately Mason's world has turned around very quickly! - July 2016 he got viral pneumonia and was stuck in hospital - By October 2016 he was diagnosed with a very rare incurable Lung Disease! - June 2017 he became one of currently only two children on the AUS/NZ paediatric Lung Transplant Wait List! Event details: http://ift.tt/2j6w9sJ

Rare Disease Day 2016 - #RDDNIH Since 2008 international Rare Disease Day has been observed on leap day or the last day of February. Image: Crippled Child, 1970 by May H. Lesser

Rare Disease Day 2016 - Since 2008 international Rare Disease Day has been observed on leap day or the last day of February. Image: Crippled Child, 1970 by May H.

Rare Disease Day 2016 video

Share the official 2016 Rare Disease Day video with your friends and family!

Rare Disease Day at NIH 2017

Rare Disease Day takes place in February to raise awareness about rare diseases. Each year, NCATS and the NIH Clinical Center sponsor Rare Disease Day at NIH.

Rare Disease Day ® 2016 - News

Rare Disease Day ® 2016 - News

Share if you love someone RARE!

Building awareness and communities to support and find treatments for Rare Diseases

#41 Rare Disease Day 2016 ||| knitting with heart

#41 Rare Disease Day 2016 ||| knitting with heart

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