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Hayley Okines suffers from an extremely rare genetic condition called Hutchinson Gilford Progeria Syndrome, also known as HGPS or Progeria.

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August 28, 2013: Hutchinson-Gilford Progeria Syndrome is an extremely rare genetic disease wherein symptoms resembling aspects of aging are manifested at a very early age. The word progeria comes from the Greek words "pro" (πρό), meaning "before" or "premature", and "gēras" (γῆρας), meaning "old age". The disorder has a very low incident rate, occurring in an estimated 1 per 8 million live births.

Hayley Okines, who suffered from an extremely rare genetic condition called Hutchinson Gilford Progeria Syndrome, died April 3rd. She was 17 yrs old.

Sam Berns’ TED Talk - Hutchinson-Gilford Progeria Syndrome ("Progeria", or "HGPS") is a rare, fatal genetic condition characterized by an appearance of accelerated aging in children. Its name is derived from the Greek and means "prematurely old."

Sam Berns, a courageous young man with Hutchinson-Gilford Progeria Syndrome. Sam may have only lived 17 years, but in his short life he taught the rest of us a lot about how to live

Progeria, the "Aging Disease"

Laymen have called it the “aging disease,” but the correct medical term is Hutchinson-Gilford Progeria Syndrome. The medical community generally refers to it as progeria. The word Progeria comes from the Greek progeros, meaning 'prematurely old'. Progeria is a rare, progressive, genetic disorder causing children to age rapidly.

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Progeria Hayley Okines Death | Teenager Hayley Okines was born with Hutchinson-Gilford progeria ...

This is a condition known as Hutchinson-Gilford Progeria Syndrome. It is a very rare condition that accelerates the aging process in children. The average life span for children with this disorder is 13 years of age.

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Hutchinson-Gilford Progeria Syndrome ("Progeria", or "HGPS") is a rare, fatal genetic condition characterized by an appearance of accelerated aging in children.

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