Mah Eeds

One of the not not so chipper things in life is that I have a Chronic Illness, and one that most people have never heard of. It's called Ehler-Danlos Syndrome which is way too formal and medical for us so my son renamed it "Mah Eeds" (pronounced like NEEDS without the "n") https://myheds.wordpress.com
30 Pins15 Followers
There are so many terrible terrible things about Chronic illness that take so much from us, & it's true, I will never be the same ... but in so many ways I am better ... I wouldn't choose it but I am more knowledgeable, even more empathetic, I'm learning to care for myself for once, and I'm sharing what I learn. I get to write, to connect on line, and have "met" some of most inspiring people I know. On a bad day life totally sucks, but on a good day I still have 3 legs but I'm a way better…

There are so many terrible terrible things about Chronic illness that take so much from us, & it's true, I will never be the same ... but in so many ways I am better ... I wouldn't choose it but I am more knowledgeable, even more empathetic, I'm learning to care for myself for once, and I'm sharing what I learn. I get to write, to connect on line, and have "met" some of most inspiring people I know. On a bad day life totally sucks, but on a good day I still have 3 legs but I'm a way better…

Blogging about the "invisible" part of invisible illness this morning ... my thumb isn't even swollen .. or red, or bones broken ... there is nothing to show the damaged aching tendon that went crazy from me opening a teabag sachet .... You can't see POTS or EDS or a whole bunch of other conditions that are debilitating 😢 __________ #ZebraStrong #MahEeds #EDS #chroniclife #brokenbody #Eedslife  #RockinMahEeds #EDS #brokenbutbeautiful #chronicillness #brokenbutnotbeat #spoonies #spoonie…

Blogging about the "invisible" part of invisible illness this morning ... my thumb isn't even swollen .. or red, or bones broken ... there is nothing to show the damaged aching tendon that went crazy from me opening a teabag sachet .... You can't see POTS or EDS or a whole bunch of other conditions that are debilitating 😢 __________ #ZebraStrong #MahEeds #EDS #chroniclife #brokenbody #Eedslife #RockinMahEeds #EDS #brokenbutbeautiful #chronicillness #brokenbutnotbeat #spoonies #spoonie…

#itsajourney #workinprogress #edszebra #zebrastrong #maheeds

#itsajourney #workinprogress #edszebra #zebrastrong #maheeds

I'm loving #instagram where have you been all my life? I'm just a #newb so be…

I'm loving #instagram where have you been all my life? I'm just a #newb so be…

Mondays are my favourite day of the week! To many that sounds crazy but with a…

Mondays are my favourite day of the week! To many that sounds crazy but with a…

My Gutter crutches @JPeaSmith

My Gutter crutches @JPeaSmith

Shelves by my bed: My "office" and the supplies on hand :)

Shelves by my bed: My "office" and the supplies on hand :)

J Peacock-Smith (@JPeaSmith) | Twitter

J Peacock-Smith (@JPeaSmith) | Twitter

Pinterest
Search